@article {10854,
	title = {Family caregiving in the community up to 8-years after onset of dementia},
	journal = {BMC Geriatrics},
	volume = {20},
	year = {2020},
	abstract = {Background
Persons with Alzheimer{\textquoteright}s disease and related dementias (ADRD) receive care from family/friends, but how care changes from the onset of dementia remains less understood.

Methods
We used the Health and Retirement Study (2002{\textendash}2012) to identify community-dwelling individuals predicted to have incident ADRD. We investigated the amount of caregiving received for activities of daily living in the 8-years after disease onset.

Results
At incidence (n = 1158), persons with ADRD received 151 h (SD = 231) of caregiving a month, 25 (SD = 26) caregiving days a month and had 1.3 (SD = 1.4) caregivers a month. By 8-years post incidence, 187 (16\%) individuals transitioned to a nursing home and 662 (57\%) died in the community. Community-dwelling persons with ADRD at 8-years post incidence (n = 30) received 283 h (SD = 257) of caregiving, 38 (SD = 24) caregiving days, and had 2.2 (SD = 1.3) caregivers.

Conclusions
Community-dwelling persons with ADRD receive a substantial amount of caregiving over the first 8-years after disease onset.},
	keywords = {Alzheimer{\textquoteright}s disease and related dementias, Community based long-term care, Health Services, Public Health},
	isbn = {1471-2318},
	doi = {10.1186/s12877-020-01613-9},
	author = {Jutkowitz, Eric and Joseph E Gaugler and Amal Trivedi and Lauren L Mitchell and Gozalo, Pedro}
}
