%0 Journal Article %J Neuroepidemiology %D 2005 %T The Aging, Demographics and Memory Study: Study Design and Methods %A Kenneth M. Langa %A Brenda L Plassman %A Robert B Wallace %A A. Regula Herzog %A Steven G Heeringa %A Mary Beth Ofstedal %A James F. Burke %A Gwenith G Fisher %A Fultz, Nancy H. %A Michael D Hurd %A Guy G Potter %A Willard L Rodgers %A David C Steffens %A David R Weir %K Health Conditions and Status %K Healthcare %X Objective: We describe the design and methods of the Aging, Demographics, and Memory Study (ADAMS), a new national study that will provide data on the antecedents, prevalence, outcomes, and costs of dementia and cognitive impairment, not demented (CIND) using a unique study design based on the nationally representative Health and Retirement Study (HRS). We also illustrate potential uses of the ADAMS data and provide information to interested researchers on obtaining ADAMS and HRS data. Methods: The ADAMS is the first population-based study of dementia in the United States to include subjects from all regions of the country, while at the same time using a single standardized diagnostic protocol in a community-based sample. A sample of 856 individuals aged 70 or older who were participants in the on-going HRS received an extensive in-home clinical and neuropsychological assessment to determine a diagnosis of normal, CIND, or dementia. Within the CIND and dementia categories, subcategories (e.g., Alzheimer disease, vascular dementia) were assigned to denote the etiology of cognitive impairment. Conclusion: Linking the ADAMS dementia clinical assessment data to the wealth of available longitudinal HRS data on health, health care utilization, informal care, and economic resources and behavior, will provide a unique opportunity to study the onset of CIND and dementia in a nationally-representative population-based sample, as well as the risk factors, prevalence, outcomes, and costs of CIND and dementia. %B Neuroepidemiology %I 25 %V 25 %P 181-191 %G eng %L pubs_2005_Neuroepidemiology.pdf %4 Aging/Dementia/Epidemiology %$ 13302 %0 Journal Article %J J Am Geriatr Soc %D 2002 %T Informal caregiving time and costs for urinary incontinence in older individuals in the United States. %A Kenneth M. Langa %A Fultz, Nancy H. %A Sanjay Saint %A Mohammed U Kabeto %A A. Regula Herzog %K Aged %K Caregivers %K Comorbidity %K Confounding Factors, Epidemiologic %K Female %K Humans %K Incontinence Pads %K Male %K Regression Analysis %K Time Factors %K United States %K Urinary incontinence %X

OBJECTIVES: To obtain nationally representative estimates of the additional time, and related cost, of informal caregiving associated with urinary incontinence in older individuals.

DESIGN: Multivariate regression models using data from the 1993 Asset and Health Dynamics Study, a nationally representative survey of people aged 70 and older (N = 7,443).

SETTING: Community-dwelling older people.

PARTICIPANTS: National population-based sample of community-dwelling older people.

MEASUREMENTS: Weekly hours of informal caregiving, and imputed cost of caregiver time, for community-dwelling older people who reported (1) no unintended urine loss, (2) incontinence that did not require the use of absorbent pads, and (3) incontinence that required the use of absorbent pads.

RESULTS: Thirteen percent of men and 24% of women reported incontinence. After adjusting for sociodemographics, living situation, and comorbidities, continent men received 7.4 hours per week of care, incontinent men who did not use pads received 11.3 hours, and incontinent men who used pads received 16.6 hours (P <.001). Women in these groups received 5.9, 7.6, and 10.7 hours (P <.001), respectively. The additional yearly cost of informal care associated with incontinence was $1,700 and $4,000 for incontinent men who did not and did use pads, respectively, whereas, for women in these groups, the additional yearly cost was $700 and $2,000. Overall, this represents a national annual cost of more than $6 billion for incontinence-related informal care.

CONCLUSIONS: The quantity of informal caregiving for older people with incontinence and its associated economic cost are substantial. Future analyses of the costs of incontinence, and the cost-effectiveness of interventions to prevent or treat incontinence, should consider the significant informal caregiving costs associated with this condition.

%B J Am Geriatr Soc %I 50 %V 50 %P 733-7 %8 2002 Apr %G eng %N 4 %1 http://www.ncbi.nlm.nih.gov/pubmed/11982676?dopt=Abstract %4 Caregivers/Comorbidity/Confounding Factors (Epidemiology)/Female/Incontinence Pads/Regression Analysis/Support, U.S. Government--PHS/Time Factors/United States/Epidemiology/Urinary Incontinence %$ 4085 %R 10.1046/j.1532-5415.2002.50170.x