Identification of dementia: agreement among national survey data, medicare claims, and death certificates.

TitleIdentification of dementia: agreement among national survey data, medicare claims, and death certificates.
Publication TypeJournal Article
Year of Publication2008
AuthorsOstbye, T, Taylor, Jr., DH, Clipp, EC, Van Scoyoc, L, Plassman, BL
JournalHealth Serv Res
Issue1 Pt 1
Date Published2008 Feb
ISSN Number0017-9124
Call Numbernewpubs20080229_Ostbye_etal.pdf
KeywordsAged, Consensus, Data Interpretation, Statistical, Death Certificates, Dementia, Female, Health Surveys, Humans, Incidence, Insurance Claim Review, Male, Mass Screening, Medicare, Research Design, United States

OBJECTIVE: To estimate the proportion of seniors with dementia from three independent data sources and their agreement.

DATA SOURCES: The longitudinal Asset and Health Dynamics among the Oldest Old (AHEAD) study (n=7,974), Medicare claims, and death certificate data.

STUDY DESIGN: Estimates of the proportion of individuals with dementia from: (1) self- or proxy-reported cognitive status measures from surveys, (2) Medicare claims, and (3) death certificates. Agreement using Cohen's kappa; multivariate logistic regression.

PRINCIPAL FINDINGS: The proportion varied substantially among the data sources. Agreement was poor (kappa: 0.14-0.46 depending upon comparison assessed); the individuals identified had relatively modest overlap.

CONCLUSIONS: Estimates of dementia occurrence based on cognitive status measures from three independent data sources were not interchangeable. Further validation of these sources is needed. Caution should be used if policy is based on only one data source.

User Guide Notes

Endnote Keywords

Dementia/Incidence/Cognitive Function/Survey questions/Medicare/Death Certificates

Endnote ID


Alternate JournalHealth Serv Res
Citation Key7207
PubMed ID18211532
PubMed Central IDPMC2323140
Grant ListR01 NR008763 / NR / NINR NIH HHS / United States
R-01 008763 / / PHS HHS / United States